Teva Launches Honestly HD Website to Provide People Living With Huntington’s Disease (HD) Information, Inspiration and Resources on HD Chorea
Teva Pharmaceuticals has launched the Honestly HD website to assist the Huntington's Disease (HD) community in understanding chorea symptoms and communicating with healthcare providers. The site offers resources for managing HD chorea, which affects 90% of those with HD, potentially impacting daily life. Alongside the website, a Twitter channel and Facebook community have been introduced to foster support. Teva emphasizes its commitment to helping patients navigate the challenges posed by this degenerative disease.
- Launch of Honestly HD website providing resources and information for HD community.
- New Twitter channel and Facebook community to support patients and families.
- Focus on managing symptoms of HD chorea to improve quality of life.
- None.
New website and Twitter channel aim to help the HD community understand what to expect with HD chorea and how to talk to a healthcare provider about preserving independence for as long as possible
HD is an inherited disorder in which nerve cells in the brain break down and are irreversibly damaged.2,3 Ninety percent of people with HD will develop chorea, a movement disorder in which abnormally high levels of dopamine in the brain cause involuntary body movements such as fidgeting, squirming, or jerking that can affect the hands and face, limbs and torso or speech and mobility.1,4 While it’s not the only symptom of HD, chorea can have a significant impact on daily activities and progressively limit peoples’ lives.
“There is an immense amount to know about HD, which can lead to feeling overwhelmed and confused. While there is no cure for HD, many symptoms can be managed, helping to ease some of the challenges of living with the disease. Early treatment of chorea, for example, can help you stay independent longer,”2 said Dr.
In addition to providing information about HD and chorea, HonestlyHD.com features helpful resources, including steps to help people decide how and when to address HD chorea, a HD chorea discussion guide to help patients and their care partners prepare for doctor’s appointments, and stories from patients and care partners about their experiences.
“The progressive nature of HD can create feelings of isolation for patients and their families, and makes planning ahead crucial,” said
To learn more, please visit HonestlyHD.com or @HonestlyHD or join the community at Honestly HD.
About Teva
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1 Claassen DO, DeCourcy J, Mellor J, Johnston C, Iyer RG. Impact of chorea on self-care activity, employment, and health-care resource use in patients with Huntington's disease. JHEOR. 2021;8(1):99-105. doi:10.36469/jheor.2021.24620.
2 Huntington’s disease information page.
3 Nance M, Paulsen JS, Rosenblatt A, Wheelock V. A Physician’s Guide to the Management of Huntington’s Disease. 3rd ed.
4 Cepeda C, Murphy K, Parent M, Levine MS. The role of dopamine in Huntington’s disease. Prog
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