UCB Elevates Hidradenitis Suppurativa Awareness with Inaugural Patient and HCP Summit with Special Appearance by Dr. Sandra Lee (AKA "Dr. Pimple Popper")
UCB, a global biopharmaceutical company, announced its inaugural Hidradenitis Suppurativa (HS) Summit to be held on August 17, 2024, in Atlanta. The event aims to provide a community forum for shared dialogue about HS, an underdiagnosed and often misdiagnosed dermatologic disease. Dr. Sandra Lee, known as 'Dr. Pimple Popper', will attend and speak at the summit.
The summit will feature expert- and patient-led panel discussions focusing on the HS journey and various aspects of living with the condition. It amplifies UCB's Make HStory program, a disease-state education campaign providing resources for HS patients and dermatologists. The event will bring together patients, caregivers, advocacy leaders, and healthcare providers to advance understanding of HS treatment and unmet needs.
UCB, un'azienda biopharmaceutica globale, ha annunciato il suo primo Summit su Hidradenitis Suppurativa (HS), che si terrà il 17 agosto 2024 ad Atlanta. L'evento ha l'obiettivo di fornire un forum comunitario per un dialogo condiviso riguardo all'HS, una malattia dermatologica sottodiagnosticata e spesso maldiagnosticata. La Dott.ssa Sandra Lee, conosciuta come 'Dr. Pimple Popper', parteciperà e parlerà al summit.
Il summit presenterà discussioni a pannello condotte da esperti e pazienti, focalizzandosi sul percorso dell'HS e sui vari aspetti della convivenza con questa condizione. Esso amplifica il programma Make HStory di UCB, una campagna di educazione sulla malattia che fornisce risorse per pazienti con HS e dermatologi. L'evento riunirà pazienti, caregiver, leader dell'attivismo e operatori sanitari per avanzare la comprensione del trattamento dell'HS e delle esigenze non soddisfatte.
UCB, una empresa biofarmacéutica global, anunció su primer Summit sobre Hidradenitis Suppurativa (HS), que se llevará a cabo el 17 de agosto de 2024 en Atlanta. El evento tiene como objetivo proporcionar un foro comunitario para el diálogo compartido sobre la HS, una enfermedad dermatológica frecuentemente subdiagnosticada y mal diagnosticada. La Dra. Sandra Lee, conocida como 'Dr. Pimple Popper', asistirá y hablará en el summit.
El summit contará con paneles de discusión liderados por expertos y pacientes, centrándose en el viaje de la HS y varios aspectos de vivir con la condición. Además, refuerza el programa Make HStory de UCB, una campaña educativa sobre el estado de la enfermedad que proporciona recursos para pacientes con HS y dermatólogos. El evento reunirá a pacientes, cuidadores, líderes de defensa y proveedores de atención médica para avanzar en la comprensión del tratamiento de la HS y las necesidades no satisfechas.
UCB는 2024년 8월 17일 애틀랜타에서 열리는 첫 번째 히드라데닐리티스 수푸라티바 (HS) 정상 회담을 발표했습니다. 이 행사는 히드라데닐리티스 수푸라티바에 대한 정보 공유를 위한 커뮤니티 포럼을 제공하는 것을 목표로 하며, 이 질병은 자주 과소 진단되고 잘못 진단되는 피부 질환입니다. 산드라 리 박사, 별명 '여드름 압출 박사',가 회담에 참석해 연설할 예정입니다.
이번 정상 회담에서는 HS 여정과 이 질환과 함께하는 다양한 측면에 초점을 맞춘 전문가 및 환자 주도의 패널 토론이 열립니다. 또한 UCB의 메이크 H스토리 프로그램을 강화하여 HS 환자와 피부과 의사를 위한 자원을 제공하는 질병 상태 교육 캠페인입니다. 이 이벤트는 환자, 간병인, 옹호 리더 및 의료 제공자를 한자리에 모아 HS 치료와 충족되지 않은 요구 사항에 대한 이해를 증진할 것입니다.
UCB, une entreprise biopharmaceutique mondiale, a annoncé son premier Sommet sur l'Hydradénite Sup purative (HS) qui se tiendra le 17 août 2024 à Atlanta. L'événement vise à fournir un forum communautaire pour un dialogue partagé sur l'HS, une maladie dermatologique souvent sous-diagnostiquée et mal diagnostiquée. Le Dr Sandra Lee, connue sous le nom de 'Dr. Pimple Popper', assistera au sommet et interviendra.
Le sommet proposera des discussions en panel menées par des experts et des patients, se concentrant sur le parcours de l'HS et divers aspects de la vie avec cette condition. Cela renforce le programme Make HStory de l'UCB, une campagne d'éducation sur l'état de la maladie fournissant des ressources pour les patients atteints de HS et les dermatologues. L'événement rassemblera des patients, des aidants, des leaders de défense et des prestataires de soins de santé pour faire progresser la compréhension du traitement de l'HS et des besoins non satisfaits.
UCB, ein globales biopharmazeutisches Unternehmen, hat seinen ersten Hidradenitis Suppurativa (HS) Gipfel für den 17. August 2024 in Atlanta angekündigt. Ziel der Veranstaltung ist es, ein Gemeinschaftsforum für den gemeinsamen Dialog über HS, eine häufig unterdiagnostizierte und oft falsch diagnostizierte Hauterkrankung, zu bieten. Dr. Sandra Lee, bekannt als 'Dr. Pimple Popper', wird am Gipfel teilnehmen und sprechen.
Der Gipfel wird Experten- und patientengeführte Podiumsdiskussionen präsentieren, die sich auf den HS-Weg und verschiedene Aspekte des Lebens mit der Erkrankung konzentrieren. Es verstärkt UCBs Make HStory Programm, eine Bildungsinitiative zum Krankheitszustand, die Ressourcen für HS-Patienten und Dermatologen bereitstellt. Die Veranstaltung bringt Patienten, Pflegepersonen, Fürsprecher und Gesundheitsdienstleister zusammen, um das Verständnis für die Behandlung von HS und die unerfüllten Bedürfnisse zu fördern.
- UCB is organizing an inaugural Hidradenitis Suppurativa (HS) Summit, demonstrating commitment to patient education and support
- The summit features Dr. Sandra Lee ('Dr. Pimple Popper'), a renowned dermatologist and TV personality, potentially increasing visibility and awareness
- The event amplifies UCB's Make HStory program, providing tools and resources for HS patients and dermatologists
- HS remains underdiagnosed and often misdiagnosed, indicating potential challenges in market penetration for related treatments
- Average time from symptom onset to HS diagnosis is 10 years, with more than three misdiagnoses, suggesting difficulties in early intervention and treatment
- The inaugural UCB Hidradenitis Suppurativa (HS) Summit will bring people living with HS, caregivers, advocacy leaders, and invited healthcare providers together on UCB's
Atlanta campus to advance understanding of the HS treatment journey and unmet needs - The UCB HS Summit will amplify the Make HStory educational campaign, which offers resources and support for those living with hidradenitis suppurativa and treating healthcare providers
- Renowned dermatologist and TV personality Dr. Sandra Lee will attend and speak at the Summit
The UCB HS Summit, taking place at UCB in
People living with HS, including Make HStory patient ambassadors ("HStory Makers"), caregivers, patient influencers, advocacy leaders, and invited healthcare providers are expected to attend. Influencers will be able to engage with the interactive elements of the Make HStory campaign.
Dr. Lee will moderate a session on honest and effective office interactions with Dr. Steve Daveluy, dermatologist at Wayne State University Department of Dermatology and HS Foundation board member, and Jasmine Espy, founder and CEO of The Association of Hidradenitis Suppurativa and Inflammatory Diseases (AHSID). They will discuss perspectives from dermatologists and HS experts, with the goal of helping to break down barriers and encourage meaningful conversations between people living with HS and their care team. Dr. Lee chose to support UCB efforts in raising awareness and educating patients and HCPs at the HS Summit after receiving an uptick in inquiries related to HS.
"In my practice, I've seen the significant impact HS can have on patients––not only physically, but also emotionally and on their quality of life overall," said Dr. Sandra Lee. "It's wonderful to see more attention on HS and companies like UCB invest in disease-state education initiatives like Make HStory and the HS Summit. The more we can shed light on this complex disease, the more we stand to help those living with HS, both those who have received a diagnosis and those who are not yet diagnosed."
HS is a chronic, complex, and debilitating inflammatory skin disease that impacts approximately one percent of the population in most studied countries, and large unmet needs remain.3,4 The average time from symptom onset to diagnosis is 10 years, with more than three misdiagnoses along the way, which can result in the disease progressing to more severe HS, particularly for those with aggressive progression.2
"At UCB, patients' experiences and the unmet needs that persist within patient communities guide our approach to scientific innovation. The UCB HS Summit and Make HStory disease-state education campaign serve as testament to UCB's ongoing commitment to improving the lives of millions of people living with inflammatory diseases like HS," said Camille Lee, Head of
UCB is proud to contribute to advancing the understanding of HS and is committed to continuing its mission to address unmet needs for those living with this disease. To learn more about UCB's commitment to patients impacted by dermatologic diseases,
visit UCB-USA.com/innovation/dermatology.
Notes to editors:
UCB HS Summit Agenda
- Making HStory Today: HS Fireside Chat: The current state of HS care in
the United States – Featuring Brent Hazelett, HS Foundation Chief Executive Officer; Brindley Brooks, Co-Founder & Executive Director, HS Connect; Dr. Jeffrey Stark, Head of Medical Immunology US, UCB; Rhonda Peebles, Head of Dermatology US, UCB - Making HStory Together: Honest & Effective Office Interactions: Perspectives from dermatologists and HS experts to help break down barriers and encourage meaningful conversations between people living with HS and their care team – Featuring Dr. Sandra Lee, Board-certified Dermatologist & Influencer (Dr. Pimple Popper); Dr. Steve Daveluy, Dermatologist at Wayne State University Department of Dermatology and HS Foundation Board Member; Jasmine Espy, Founder and CEO of The Association of Hidradenitis Suppurativa and Inflammatory Diseases (AHSID)
- Making HStory in Care: Navigating the Treatment Landscape & Patient Journey for HS: Patient influencer and HCP discussion on HS management techniques and treatments, including having good conversations between patients and providers – Featuring Dr. Jenny Hsiao, Associate Clinical Professor of Dermatology at the University of
Southern California and Member of the HS Foundation; HStory Maker Mario Otero - HStorical Narratives: HS & Mental Health: Patient influencer discussion on how HS has impacted their mental health – Featuring Brindley Brooks, Co-Founder & Executive Director, HS Connect; HStory Makers Cydney Carter, Joey Torre, Liz Tassey
- Nourishing Change: Making HStory with Health & Wellness: Patient influencer discussion on how nutrition and lifestyle can play a role in HS management – Featuring HStory Maker Leia Ali; Logan Hawk, Marketing Specialist, UCB
About Hidradenitis Suppurativa (HS)
Hidradenitis suppurativa (HS) is a chronic, recurring, painful, and debilitating inflammatory skin disease.3,4 The main symptoms are nodules, abscesses, and pus-discharging draining tunnels (channels leading out of the skin), which typically occur in the armpits, groin, and buttocks.3,4 People with HS experience flare-ups of the disease as well as severe pain, which can have a major impact on quality of life.3,4 HS most commonly develops in early adulthood and affects approximately one percent of the population in most studied countries.3,4 Approximately one-third of people with HS have a family history of HS, and lifestyle factors such as smoking and obesity can also play a crucial role in the clinical course of HS.3,4
The symptoms of pain, discharge, and scarring are not only a physical burden. People with HS also experience stigma: worrying about or directly experiencing negative attitudes and reactions from society in response to their symptoms.5 These feelings can lead to embarrassment, social isolation, low self-esteem, and sexual life impairment, and impact all areas of life, including interpersonal relationships, education, and work.2
About Make HStory
Created in partnership with individuals living with HS and their dermatologists, UCB's Make HStory disease-education campaign features stories of those living with HS, informational videos, and interactive tools and resources for those seeking management options, daily care, and information about HS. Engaging both dermatologists and patients with information about HS helps ensure that key facts critical to improving diagnostics, care, and management can be incorporated in patient care, whether raised by a patient or their provider. By encouraging patient and dermatologist conversations, Make HStory aims to help increase understanding of the disease and empower patients to have conversations with their dermatologist about management options. To stay up to date on the latest HS resources, visit https://www.makehstory.com/ and follow Make HStory on Instagram at @MakeHStory and on Facebook at www.facebook.com/makehstory.
For further information, contact UCB:
Nicole Herga
T +1 773.960.5349
email nicole.herga@ucb.com
About UCB
UCB,
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References
1 Ingram JR. The epidemiology of hidradenitis suppurativa. Br J Dermatol. 2020 Dec;183(6):990-998. doi: 10.1111/bjd.19435. Epub 2020 Sep 3. PMID: 32880911.
2 Kokolakis G, Wolk K, Schneider-Burrus S, et al. Delayed Diagnosis of Hidradenitis Suppurativa and Its Effect on Patients and Healthcare System. Dermatology. 2020;236:421–430.
3 Jemec GBE. Clinical practice. Hidradenitis suppurativa. N Engl J Med. 2012;366(2):158-164.
4 Sabat R, Jemec GBE, Matusiak L, et al. Hidradenitis suppurativa. Nat Rev Dis Primers. 2020;6(1):18.
5 Koumaki D, Efthymiou O, Bozi E, et al. Perspectives on Perceived Stigma And Self-Stigma In Patients With Hidradenitis Suppurativa. Clin Cosmet Investig Dermatol. 2019;12:785–90.
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