NORD, Paramount Pictures Join Forces to Raise Awareness of Rare Disease
Paramount Pictures (PARA) and the National Organization for Rare Disorders (NORD) have announced a partnership to raise awareness for rare diseases in conjunction with the release of 'Novocaine'. The campaign runs through Rare Disease Day on February 28, 2025, with Paramount matching donations up to $40,000 to support NORD's mission.
The initiative highlights that rare diseases affect 1 in 10 Americans, with half being children. NORD has provided $200 million in financial assistance since 2018, with 93% of donations directly funding patient assistance programs. To promote awareness, NORD's Running for Rare® team will host a 5K event in Austin, Texas, on March 1, featuring actor Jack Quaid and offering participants T-shirts and advanced screening tickets to 'Novocaine'.
The collaboration aims to address the challenges faced by over 30 million Americans living with rare diseases, who experience medical costs 3-5 times higher than average, delayed diagnoses, and treatment options.
Paramount Pictures (PARA) e la National Organization for Rare Disorders (NORD) hanno annunciato una partnership per aumentare la consapevolezza sulle malattie rare in concomitanza con l'uscita di 'Novocaine'. La campagna si svolgerà fino al Giorno delle Malattie Rare il 28 febbraio 2025, con Paramount che raddoppierà le donazioni fino a $40.000 per sostenere la missione di NORD.
L'iniziativa sottolinea che le malattie rare colpiscono 1 americano su 10, di cui la metà sono bambini. NORD ha fornito $200 milioni in assistenza finanziaria dal 2018, con il 93% delle donazioni che finanziano direttamente i programmi di assistenza ai pazienti. Per promuovere la consapevolezza, il team Running for Rare® di NORD ospiterà un evento di 5K ad Austin, Texas, il 1 marzo, con la partecipazione dell'attore Jack Quaid e offrendo ai partecipanti magliette e biglietti per la proiezione anticipata di 'Novocaine'.
La collaborazione mira ad affrontare le sfide affrontate da oltre 30 milioni di americani che vivono con malattie rare, che affrontano costi medici 3-5 volte superiori alla media, diagnosi ritardate e opzioni di trattamento limitate.
Paramount Pictures (PARA) y la National Organization for Rare Disorders (NORD) han anunciado una asociación para aumentar la concienciación sobre las enfermedades raras en conjunto con el lanzamiento de 'Novocaine'. La campaña se llevará a cabo hasta el Día de las Enfermedades Raras el 28 de febrero de 2025, con Paramount igualando donaciones hasta $40,000 para apoyar la misión de NORD.
La iniciativa destaca que las enfermedades raras afectan a 1 de cada 10 estadounidenses, siendo la mitad niños. Desde 2018, NORD ha proporcionado $200 millones en asistencia financiera, con el 93% de las donaciones financiando directamente programas de asistencia para pacientes. Para promover la concienciación, el equipo Running for Rare® de NORD organizará un evento de 5K en Austin, Texas, el 1 de marzo, con la participación del actor Jack Quaid y ofreciendo a los participantes camisetas y entradas para la proyección anticipada de 'Novocaine'.
La colaboración tiene como objetivo abordar los desafíos que enfrentan más de 30 millones de estadounidenses que viven con enfermedades raras, quienes experimentan costos médicos de 3 a 5 veces más altos que el promedio, diagnósticos retrasados y opciones de tratamiento limitadas.
파라마운트 픽쳐스 (PARA)와 희귀질환 국가기구 (NORD)가 '노보카인'의 개봉과 함께 희귀질환에 대한 인식을 높이기 위한 파트너십을 발표했습니다. 이 캠페인은 2025년 2월 28일 희귀질환의 날까지 진행되며, 파라마운트는 NORD의 사명을 지원하기 위해 최대 $40,000까지 기부금을 matching합니다.
이 이니셔티브는 희귀질환이 미국인 10명 중 1명에게 영향을 미치며, 그 중 절반이 어린이임을 강조합니다. NORD는 2018년 이후로 $2억 달러의 재정 지원을 제공했으며, 93%의 기부금이 환자 지원 프로그램에 직접 사용됩니다. 인식 증진을 위해 NORD의 Running for Rare® 팀은 3월 1일 텍사스 오스틴에서 잭 퀘이드 배우와 함께 5K 이벤트를 개최하며, 참가자에게는 티셔츠와 '노보카인'의 사전 상영 티켓이 제공됩니다.
이번 협력은 희귀질환으로 고통받는 3천만 명 이상의 미국인이 겪는 의료비가 평균보다 3-5배 높고, 진단 지연 및 치료 옵션의 부족이라는 문제를 해결하는 것을 목표로 합니다.
Paramount Pictures (PARA) et la National Organization for Rare Disorders (NORD) ont annoncé un partenariat pour sensibiliser aux maladies rares en lien avec la sortie de 'Novocaine'. La campagne se déroulera jusqu'au Journée des Maladies Rares le 28 février 2025, avec Paramount doublant les dons jusqu'à 40 000 $ pour soutenir la mission de NORD.
L'initiative souligne que les maladies rares touchent 1 Américain sur 10, dont la moitié sont des enfants. NORD a fourni 200 millions $ d'assistance financière depuis 2018, avec 93 % des dons finançant directement des programmes d'aide aux patients. Pour promouvoir la sensibilisation, l'équipe Running for Rare® de NORD organisera un événement de 5 km à Austin, Texas, le 1er mars, avec la participation de l'acteur Jack Quaid et offrant aux participants des t-shirts et des billets pour la projection anticipée de 'Novocaine'.
La collaboration vise à aborder les défis auxquels font face plus de 30 millions d'Américains vivant avec des maladies rares, qui subissent des coûts médicaux 3 à 5 fois plus élevés que la moyenne, des diagnostics retardés et des options de traitement limitées.
Paramount Pictures (PARA) und die National Organization for Rare Disorders (NORD) haben eine Partnerschaft angekündigt, um das Bewusstsein für seltene Krankheiten im Zusammenhang mit der Veröffentlichung von 'Novocaine' zu erhöhen. Die Kampagne läuft bis zum Tag der seltenen Krankheiten am 28. Februar 2025, wobei Paramount Spenden bis zu 40.000 $ zur Unterstützung der Mission von NORD verdoppelt.
Die Initiative hebt hervor, dass seltene Krankheiten 1 von 10 Amerikanern betreffen, wobei die Hälfte Kinder sind. NORD hat seit 2018 200 Millionen $ an finanzieller Unterstützung bereitgestellt, wobei 93 % der Spenden direkt Programme zur Patientenhilfe finanzieren. Um das Bewusstsein zu fördern, wird das Running for Rare®-Team von NORD am 1. März in Austin, Texas, eine 5K-Veranstaltung mit dem Schauspieler Jack Quaid ausrichten und den Teilnehmern T-Shirts und Tickets für die Vorabaufführung von 'Novocaine' anbieten.
Die Zusammenarbeit zielt darauf ab, die Herausforderungen anzugehen, mit denen über 30 Millionen Amerikaner leben, die an seltenen Krankheiten leiden und medizinische Kosten haben, die 3-5 Mal höher sind als der Durchschnitt, verzögerte Diagnosen und eingeschränkte Behandlungsmöglichkeiten.
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Paramount to match funds donated to NORD in support of new film Novocaine
The joint campaign runs through Rare Disease Day® on Feb. 28, during which time Paramount Pictures will match every dollar raised — up to
No one is immune from rare disease, which collectively impact one in 10 Americans, half of whom are children. Because each specific condition impacts a small number of people, medical expertise and funding for research are often scarce. Patients face delayed diagnoses, limited treatment options, and significant financial and emotional burdens. People living with rare diseases incur medical costs that are three to five times higher than those without a rare disease.
"Rare disease patients, their families, and caregivers need new allies in the public beyond those directly impacted by rare conditions," said Alexa Moore, NORD Vice President of Development. "We are grateful for Paramount Pictures' support and commitment to helping us raise awareness of rare diseases as a public health crisis that is larger than any one specific disorder, affecting our loved ones, friends, neighbors, and colleagues. We are excited to work with them to amplify the voices of those who need our support while raising critical funds to continue our work."
Donations to NORD directly impact the rare disease community, with nearly
"We are honored to collaborate with NORD to bring attention to the millions of Americans impacted by rare diseases," said Jennifer Lynch, Senior Vice President, Corporate Social Responsibility and Internal Communications, at Paramount Pictures. "Through this fundraiser, in conjunction with Rare Disease Day, we hope to raise awareness and drive meaningful, long-term support for this important cause."
To further engage the public, NORD's Running for Rare® team will participate in a 5K event in
The
Taking place on the last day of February every year, Rare Disease Day is an international initiative dedicated to raising awareness and advocating for improved diagnosis, treatment, and care for the 300 million people living with rare diseases globally. NORD is proud to serve as the official
To learn more about the 5K event, visit the event page.
About the National Organization for Rare Disorders (NORD)
With a 42-year history of advancing care, treatments and policy, the National Organization for Rare Disorders (NORD®) is the leading and longest-standing patient advocacy group for the more than 30 million Americans living with a rare disease. An independent 501(c)(3) nonprofit, NORD is dedicated to individuals with rare diseases and the organizations that serve them. NORD, along with its more than 350 patient organization members, is committed to improving the health and well-being of people with rare diseases by driving advances in care, research and policy. For more information, visit rarediseases.org.
About Paramount Pictures
Paramount Pictures Corporation (PPC), a global producer and distributor of filmed entertainment, is a unit of Paramount Global (NASDAQ: PARA, PARAA), a leading global media and entertainment company that creates premium content and experiences for audiences worldwide. Paramount Pictures has some of the most powerful brands in filmed entertainment, including Paramount Pictures, Paramount Animation, and Paramount Players. PPC operations also include Paramount Home Entertainment, Paramount Pictures International, Paramount Licensing Inc., and Paramount Studio Group.
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SOURCE National Organization for Rare Disorders (NORD®)
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