Horizon Therapeutics plc Ranked Second in Overall Corporate Reputation in U.S. PatientView Survey of Patient Groups
Among patient groups familiar with Horizon, the company ranked first in patient group relationships, integrity, services beyond the pill and patient centricity
Horizon ranked first among patient groups familiar with the company in the following categories:
- Providing services ‘beyond the pill’
- Acting with integrity
- Having an effective patient-centered strategy
- Fostering patient-group relationships
- Being transparent with funding
“Our approach has always been to connect with patient advocacy groups, learn from them and support programs and initiatives that connect people and move research, education and awareness forward,” said
Among patient groups who reported working with the company, Horizon ranked second in having an effective patient-centered strategy, providing high-quality information for patients and services ‘beyond the pill’, being transparent with funding, acting with integrity and fostering patient-group relationships.
Patient groups were given the opportunity to comment anonymously as part of the report and one responder from a national kidney disease patient group wrote: “I have never seen a pharmaceutical company as patient-centered and proactive as Horizon, which found and reached out to us, spent several meetings to share what they do and why, and chose to support an important effort.”
Global Report Highlights
In
- For both rankings, in each of the 13 indicators, Horizon ranked in the top tier of global pharmaceutical and biotechnology companies.
- Among patient groups that reported working with Horizon, the company ranked fifth overall; these groups ranked the company in the top five when asked about attributes such as patient centricity, patient-group relations and high integrity.
- Among patient groups who were familiar with the company, Horizon ranked seventh overall.
Horizon’s Commitment to Patients and their Advocates
Horizon actively partners with patient advocacy organizations to raise awareness for many underrepresented diseases and to advocate on behalf of patients and their communities. 2021 highlights included:
- Collaborating with more than 100 patient groups to expand outreach, increase engagement and develop educational opportunities for patients and their caregivers in live and virtual settings to elevate their stories, experiences and voices.
- Genetics and rare conditions: Horizon supported “Year of the Rare Carrier,” and elevated the conversation about the challenges rare disease carriers face as caregivers and patients themselves. Carriers have a genetic variant –a change in their DNA – on one of their two copies of a gene. Often, this variant is associated with a rare condition, and though it may or may not lead to symptoms of a rare disorder, it can be passed on to children.
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Enrichment for patients: Horizon partnered with the
EveryLife Foundation to create the #RAREis Scholarship, a$1 million $5,000 - Sharing the uncensored truth of rare disease: Since launching in 2017 the #RAREis platform has elevated more than 300 photos, blogs and stories submitted by the rare disease community, covering more than 70 different rare diseases. Horizon also has featured more than 20 #RAREis Voices videos from leading advocates, patients and researchers sharing common experiences many living with rare diseases face.
- Gout education: Horizon supported more than 100 gout patient education programs through 70 unique national and local advocacy and professional organizations. These live and virtual programs reached more than 10 million viewers and participants in 2021.
- Awareness of neuromyelitis optica spectrum disorder (NMOSD): Horizon partnered with the NMOSD advocacy community for a storytelling event that helped NMOSD patients articulate and elevate their stories about living with this rare disorder publicly.
- Psycho-social support and inclusivity related to thyroid eye disease: Horizon launched a new education resource, IdentifEYE TED, to bring attention to symptoms, risks and care sources as one tactic to support the second annual Thyroid Eye Disease (TED) Awareness Week.
About Horizon
Horizon is focused on the discovery, development and commercialization of medicines that address critical needs for people impacted by rare, autoimmune and severe inflammatory diseases. Our pipeline is purposeful: We apply scientific expertise and courage to bring clinically meaningful therapies to patients. We believe science and compassion must work together to transform lives. For more information on how we go to incredible lengths to impact lives, visit www.horizontherapeutics.com and follow us on Twitter, LinkedIn, Instagram and Facebook.
View source version on businesswire.com: https://www.businesswire.com/news/home/20220516005182/en/
Horizon contacts:
Executive Director, Corporate Visibility & Media Strategy
media@horizontherapeutics.com
Ireland Media:
Gordon MRM
ray@gordonmrm.ie
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